Boy it’s been a couple of crazy weeks here lately. Two weeks ago while Ken was at his Dungeons & Dragons game I was here at the house and I had not spoken to anyone on the phone and when Ken called at about 8:00PM I couldn’t talk. My tongue was like a big gum ball you get at a vending machine! I was like, “What the hell is going on?”. I freaked out for a bit wondering what caused it. The previous Saturday I had been eating pizza when I got a REAL sharp pain in my mouth. I felt around and nothing was there. By Monday I couldn’t swallow because the pain was so bad and my neck and throat were swollen. So I take my skinny butt up to Urgent Care thinking they’ll probably know what’s going on. They sent me to a ENT (ear, nose and throat) specialist upstairs. I had three doctors look at me, none of them had a reason of what was going on. So I was sent home with steroids and a strong antibiotic. You never really know how much you can take things for granted when you can speak and communicate with another person. I was a basket case for a good week as I tried to go on as usual, without a voice. Last Sunday my voice did start coming back and now, it’s still a bit sloppy at times but my tongue and speaking is much better now. I am so very grateful to just have my voice back!

This past week has been busy with all the other doctors that I have to see. I saw the hematologist/oncologist on Tuesday of this past week and I was thinking to myself, Buddy if you think you’re getting another bone marrow biopsy out of me anytime soon, you ARE HIGH!!! It isn’t going to happen. Anyway, he reviewed my progress or lack thereof and put me back on Marinol. Marinol is an synthetic cannaboid for appetite that is most often given to people with cancer and anorexia. For me it’s for my stomach. It really stirs the appetite, making you want to eat just about anything you can get your hands on! This time I’m on a lower dose, before when I was on it, I had a hard time doing anything after taking it. Basically, I was stoned without having touched cannabis. Let’s just say it’s REALLY gives you the munchies!

This week I have a couple of appointments. I need to see a cardiologist because my heart rate has been off the charts and my doctors don’t have a clue as to why. Hopefully the cardiologist can get it figured out with the least amount of hassle.

I would like to just have a week that I don’t have to see a doctor, for me …. that would be bliss! :)

First I would like to say THANK YOU SO VERY MUCH to the people who commented on my last post. As many of you know I usually respond to comments, if for no other reason to let you know I do read them. I haven’t been online much the past week, been busy with things that keep me off the computer and away from anything that would remind me of what I might hear come yesterday.

It’s not cancer thankfully. However, my bone marrow is irregular/abnormal but he doesn’t know why. The doctor is a well known hematologist and oncologist. He had two pathologists go over my bone marrow sample and both agreed it’s abnormal but for what reason, they are unable to figure out why it’s abnormal. So in the meantime, I dealing with a compromised immune system and I have to be careful not to pick up any countless germs that I might come into contact with. I had hoped for answers, but got only that it’s not cancer. He feels the neuropathy is related to what is going on, but I still have that and the hypogammagoblinlunemia. *try to say that fast three times* So where do I go from here? I really don’t know. I am going to discuss this entire matter with my personal physician and see what he thinks we should do.

I really appreciate all the love, friendship and support I have got from so many. I am not alone as I felt, especially when reading all the emails and comments.

My deepest thanks to you all!!!  :)

As most of my friends online have noticed that I haven’t been online much over the past week or so, mainly because I just wasn’t up to it with everything that has been going on. It’s not my intention to keep people who have been so supportive and true friends but I just didn’t want to sit at the computer much as I have had a lot on my mind.

I saw two neurologists this week and I now know why I have been having balance problems and being an incredible klutz, stumbling and hopping around like I was a drunk person. Well my primary neurologist did an EEG on my head and asked a college to do the EMG as the the first neurologist was pressed for time but wanted the results of the EMG before I saw him again yesterday. I have progressive polyneuropathy in my legs and it’s worse in my feet. It sure answered a lot of questions and symptoms that I hadn’t put together until I looked it up and presto! It’s not really something that my primary physician missed because I never really brought the symptoms up to him because I didn’t think the issues with my balance and the way my legs and feet feel has any correlation. So the main reason for seeing the neurologist was headaches and for him to review the MRI of my brain. I think I’ll let my primary physician contend with the headaches, the medication he’s given me so far seems to help. But then now I have a lot more tests to be done with regard to the polyneuropathy. My grandmother had neuropathy from her diabetes and for her it was very painful. I haven’t had burning or pain with mine yet so I didn’t think it was what it is. I have already lost fine motor function in my feet which now I’m thinking might have played a role in my car accident. First the neurologist needs to find the cause of the neuropathy, then we can hopefully treat it. I have a ton of blood work on order and they are going to test for heavy metals, there has to be some reason the nerves in my legs and feet are dying off.

Again, I’m sorry for keeping everyone in the dark – I just didn’t know anything and didn’t want to go off half-cocked.

Ken has been wonderful throughout all this. Giving me my space and he even got me some flowers and a very sweet card for encouragement. The flowers smell great and sit next to my recliner just for the utter smell! What a sweetheart!!!

I hope everyone is doing alright, thanks for reading and thanks for always being there!!!

Quote from Cat's site:

Nourishment

This is a must read, in my opinion. Thanks Cat for the trackback. :)